This is a quick overview of Blake’s Story. I will be writing full detailed post and placing them in the Categories section on the Homepage. Click on All Things Blake and start at the beginning to read the full story in order.
Blake was born healthy and an absolute doll baby. In this picture he was 6 weeks old.
As time went on, Blake was physically behind and wasn’t saying sounds or cooing like they thought he should. But he loved eye contact and was full of life.
During the first year of Blake’s life, he didn’t have any MAJOR health problems. Although he struggled with the triple head sword. Allergies! Asthma! Terrible skin rashes!
Looking back, I wish I could go back and tell myself, “Angie, there is something wrong. You are only masking a problem that cannot be covered up. There are other options, be proactive in finding and fixing it. His little body can only handle so much more.”
February 2015 our world came crashing down when Blake’s kidneys went into complete failure. After kidney biopsy’s and lots of testing, the specialist discovered……..
“Blake has an Auto Immune disease. His body is attacking itself. There is no cure. This caused him to have a rare chronic Kidney Disease called C3 Glomerulonephritis. His kidneys will not just start functioning, that is not how this works. They will continue to fail. When it happens again, I am afraid his little body will not recover.”
Of course my first question was, what can I do to help him? The Nephrologist answer was medication, but explained to me the meds will only work for a short amount of time. The truth is, they didn’t lie. This is a rare disease and those that have it struggle. We were sent home with bottles of prescriptions. But this answer wasn’t good enough for me! This is when we decided to change our whole life to save Blake’s.
After we got home, the journey began. Blake was still very sick. His behavior got really strange, it was so hard to see him like that. I will explain all of this later, but I am afraid he was going into full blown autism as well. We kept fighting through, we kept learning and eventually Blake started to heal. Mind and body. The Nephrologist have taken Blake off all of his medication, still not fully confident that his body will continue to stay on course. If I am being honest I am not sure either. I do not know what the future holds but I do know that we won’t ever give up!
This journey hasn’t been easy and Blake is still not fully healthy. We still have very hard days. I am so thankful for Blake every day. The Nephrologist are completely shocked by his progress. We have made huge strides and continue to get better every day.